The Sunday Diaries Little stories from our day care centers
Sundays are busy at Samraksha. Several families are there for the weekly therapy and counselling. Some are there just to chat about the upcoming transplantations scheduled for their children. I had a message delivered to me today by the mother of one of the children who had undergone transplant today.
Sankalp India Foundation, Bangalore, Think Foundation, Mumbai and We Care Trust, Mumbai collaborated with Kokilaben Dhirubhai Ambani Hospital,Mumbai and had started a Bone Marrow Transplantation Project at Mumbai for Thalassemia patients coming from financially poor background. The project was started in April 2016 and Karan Veer Singh from Think Foundation was the project coordinator. The first child who was transplanted was about to get discharged and the second child had got admitted. At this time we had a shocking news.
"State level Consultation on Status of Thalassemia and Other Hemoglobinopthies in Karnataka" was organised by Sankalp India Foundation with the major thalassemia centers in Bangalore as co-hosts on 9th of March 2016 at Rashtrotthana Parishat, Bengaluru.
With the support of DKMS Germany and Cure2Children, Italy, Sankalp India Foundation has been offering free HLA typing to patients from all over the country. Several of these patients find a match within their families. Once the match is found, starts the journey of screening and preparation for the transplantation.
November 14 2011 saw the birth of a new commitment for volunteers at Sankalp. From a bunch of volunteers taking up emergency blood requests and organizing a few blood donation drives, we took up something more serious and potentially game changing. On that day, Sankalp’s first Thalassemia day care centre was inaugurated. The fact that close to 90% of thalassemiacs in India do not receive proper care and management (As per the results of a study published by WHO) was too hard to be taken lightly. That day the dream was to make life better for each child with thalassemia.
Yesterday a family came to seek help for their child who is detected with thalassemia. We meet parents only on Sundays but we made an exception for this family as they had come all the way from a place 600 km away. The 8 month old baby girl had already received 3 transfusions and the family wanted to discuss the prospects of transplants. They had already visited 3 of the very popular BMT centres in the country and taken opinion. Unfortunately though the child had a sibling, his HLA type did not match.