Sankalp Program for Thalassemia Cure

Global experts of BMT for Sickle Cell Disease visit us

We were happy to have the visit of eminent global experts of transplantation for Sickle Cell Disease, Dr. Francoise Bernaudin and Dr. Mathieu Kuentz from the Referral Center for Sickle Cell Disease, CHIC, Creteil Hospital and the DrepaGreffe Association France from 27th February to 1st March 2017.

They visited Sankalp-People Tree Centre for Pediatric Bone Marrow Transplantation and also Project Samraksha - the day-care centre for thalassemia.

Experience of a young doctor at our BMT unit

It was an incredible experience working in the Bone Marrow Transplant unit of People Tree Hospital -Sankalp collaboration. I absolutely fell in love with the meticulous nature and detailed organization in the system. It gives an opportunity to the physicians to remotely monitor patients with able assistance from the nurses.

I would like to mention a few incidents which have made a lasting impression on me.

GRFS: as a true measure of outcome for BMT

Bone marrow transplantation is becoming an increasingly acceptable curative option for patients suffering from thalassemia. This coincides with improved access to care and management of thalassemia. There is a need for a measure to be available for the patient families, support organisations, government and donors to make a truly informed choice on whether or not the option of a bone marrow transplantation of a particular kind at a particular centre is the best option for the patient.

First meeting of the Sankalp-Cure2Children thalassemia BMT network, India organised

The meeting was organized with the intention of developing synergy between the various centers involved in the transplantation for thalassemia as part of the Sankalp-Cure2Children Thalassemia BMT Network. The following organizations were represented in the meeting:

Cure2Children Foundation, Italy

Jagriti Innovations

Kokilaben Dhirubhai Ambani Hospital, Mumbai

Project Samraksha, Bangalore

Sankalp India Foundation to start a Bone Marrow Transplantation Center at Ahmedabad

Five years back, on 14th November 2011, with the cutting of a ribbon the Thalassemia Day Care Centre at Indira Gandhi Institute of Child Health was formally inaugurated. A small gift of children's day, a step in the direction of health, well-being and fulfilment of dreams for the little ones.

Little Nirmitha get’s her bone marrow transplant

Normally, when you tell a family which has a child who suffers from thalassemia, that they have a match, at least for one moment you expect to see a smile. This was not the case when we broke the news to five-year-old Nirmitha's family. She was detected with thalassemia within the first year of her birth and ever since she was dependent on monthly blood transfusions. Though they did come for the follow-up meetings, the expression on their face did not suggest that they were willing to go for the transplant.

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