Thalassemia Prevention, Management and Cure
In 2013, one morning a few weeks after the new day care cent with Rashtrotthana Parishat
The next edition of the Sankalp-Cure2Children Network meeting for BMT was organised on 4&5 June 2019 at People Tree Hospitals, Bangalore. The two day meeting held every six months is an opportunity for our transplant teams to get together and brainstorm - contributing to the fine outcomes.
Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients.
Last month we had 205 patient visits with 276 transfusions at Indira Gandhi Institute of Child Health. The average pre-transfusion hemoglobin was 8.3gm/dl and the estimated post transfusion hemoglobin was 12.1 gm/dl. At Samraksha we had 164 patient visits with 205 transfusions.
Bone marrow transplantation celebrated the completion of 43 years this year. In last four decades BMT has established itself as the only definitive cure for a number of blood disorders. In India, the BMT program is 30 years old and the first transplant dates back to 1983 which was done at Tata Memorial Hospital, Mumbai.
On 19th February 2015 a group of people with very high interest in improving care and management for thalassemia came together in a room to explore the next steps for thalassemia management.
The intention was to share and to learn in an environment which maximizes learning and fosters cooperation.
Hope is a good thing - may be the best of things..
Over last few months we have offered free HLA typing to 160 families in Karnataka,Maharashtra and Telangana.