The book of Thalassemia International Federation’s guidelines on the management of transfusion dependant thalassemia is an essential resource for anyone involved in care giving for patients suffering from thalassemia. The latest edition has been released recently and is available for viewing and download from TIF’s website at http://www.thalassaemia.org.cy.
Fail Story is a new section in Sankalp Patrika. We often share stories of success with you. We thought that it may be interesting or rather important to share with you the stories of failure that we face. We hope that one of you will find a better solution to the problems we faced.
Fail Story is a new section in Sankalp Patrika. We often share stories of success with you. We thought that it may be interesting or rather important to share with you the stories of failure that we face. We hope that one of you will find a better solution to the problems we faced. At least the learning we had could be made known so that the next attempt does not have to discover the problems all over again.
Sankalp has been involved in thalassemia management for last 3 years. What started as an initiative with very little prior experience and knowledge has blossomed into a comprehensive thalassemia management and care program. In the last three years we have benchmarked our performance with our won prior results and using the Thalassemia international Federation's guidelines for clinical management as the gold standard to compare against. Centres supported by us have indeed shown vast improvement in the quality of care being given to the thalassemia patients.
