Recently, there was a news of 35 patients who were undergoing regular management for thalassemia in Civil Hospital Jalandhar being detected with Hepatitis C. This is not the first time such news has come out in open. This news comes as a shock. Can something be done?
Sankalp Program for Thalassemia Management
World Health Organization (WHO) has been planning and adopting several measures to ensure that equity of care is never compromised or ignored in the delivery of healthcare.
A clinical trial is an important element of research in the field of medicine and science. Before any treatment protocol, or medicine or any practice related to the patient is brought into mainstream practice, it is essential that the trials have proved it's impact.
Last year, we had shared how extremely high ferritin levels are being controlled using a combination of deferasirox and deferoxamine at our centres. "A Novel approach to control very high ferritin levels - our experience - (Volume 6 Issue 8 September 2016 Pg 6-7)" Iron overload is the root cause of the complications associated with thalassemia.
He may just pass on as just another man from the hinterland of Bihar when you first see him. Vijju’s looks of-course don’t give out the determined and courageous soul inside. He is the father of little Chetan - a child from Bhojpur, Bihar who suffers from thalassemia.
Sankalp Program for Thalassemia Management is aimed at ensuring that adequate and appropriate care is provided to each child taking coming to our centres. The overall aim is to resume normalcy in their lives. A key component in this pursuit is reducing the time it takes to provide appropriate medical intervention.
Parents of thalassemic children have several queries regarding the treatment regimen and overall health of their children. Factors that affect growth of the child comes out as a major concern in interaction with parents.
Last month we cross the 1000 mark for the number of blood units being transfused to patients suffering from thalassemia across the state of Karnataka.
After the end of a long busy day as I sat to look at some videos, I got a call from Dr Reshma. She informed me that a child who is taking treatment at our centre needed an urgent appendicectomy – removal of his appendix which had become infected and inflamed. It was a Saturday night.
When I walked up the stairs of Samraksha today I realised that a little girl was peeping down from the stairs. The look in her eyes told me that she was waiting for me. I shared the usual pleasantries with the family and walked across a hall full of children and parents straight to the doctor's room.