Sankalp Program for Thalassemia Management

Vision

Each thalassemia patient should receive appropriate and adequate care and management irrespective of their financial status with the goal of restoring the quality and normalcy of their life.

About the Program

Thalassemia is a genetic blood disorders the individuals suffering from which do not produce blood. They depend on blood transfusions throughout their life. With proper care and treatment the patients can live a near normal life.

However, most individuals suffering from thalassemia die before celebrating their 18th birthday. There are 60,000 individuals with thalassemia major in India and 10,000 new births each year. Cost on management of thalassemia in private setup is estimated upwards from Rs 1,00,000/- per year in India. Because of high costs of management, inadequate care and management, lack of focus on treatment and incidence based treatment these children lose the battle against the disease at an early age.

Sankalp Program for Thalassemia Cure offers end to end management of thalassemia to each child in need. The following outlines the structure of the program:

 

Key features of our program

Key Features

Key features of our program

Project Sites

RDT Hospital Kalyandurga
Vishwa Bharathi Thalassemia Day Care Centre, Kurnool
Indian Red Cross Society, Nellore
Thalassemia and Sickle Cell Centre, Nagpur
RDT Hospital Bathalapalli
Himalayan Society of Thalassemics, Dehradun
Shree Jalaram Abhuday Sadbhavana Trust, Ahmedabad
Indian Red Cross Society, Rajkot
Sarvoday Samarpan, Mumbai
Indian Red Cross Society, Eluru
Mamata Foundation, Vijayawada
Radha Mohan Mehrotra Global Hospital Trauma Center, Abu Road
Thal Day Care, Indira Gandhi Institute of Child Health, Bangalore
Project Samraksha, Rashtrotthana Parishat, Bangalore
Jai Shivshakti Center For Thalassemia, Jawaharlal Nehru Medical College, Belgaum
Wenlock District Hospital, Mangalore

Thalassemia Management Dashboard

Total Patients Total Patient Visits on Nov-2020 Total Transfusions on Nov-2020 Avg. Pre-Hb on Nov-2020
Samraksha 411 516 554 9
IGICH 258 223 196 8.9
KLE Belgaum 217 265 246 8.4
Mangalore Wenlock 112 134 119 8.7
TSN 1831 1006 1121 8.5
RDT 148 145 98 8.8
HST Dehradun 24 3 3 5.8
SJA 109 115 71 8.6
IRCS Rajkot 65 112 128 9
SSM 160 259 433 8.2
IRCS Elluru 165 0 0 NAN
IRCS Nellore 54 60 60 7.9
Mamata Foundation 90 11 10 7.1
RMMG Abu Road 33 54 48 9.1
RDK 16 20 20 6
VBTC Kurnool 13 0 0 NAN

Thalassemia Management