24 August 2013, Bangalore. A new thalassemia day care centre - 'Project Samraksha' an initiative of Rashtrotthana Parishat supported by Sankalp India Foundation. Mrs. Shobha Tuli (Vice President of Thalassemia International Federation), Dr Mamata Mangalani (Prof. and Head, Dept. of Paedriatics, LMT General Hospital, Mumbai) and Mr Vinay Shetty(Vice President, Think Foundation, Mumbai) graced the occasion with their kind presence along with other distinguished guests, parents, donors and volunteers.
Project Samraksha will provide integrated care to the children suffering from thalassemia. Whether it is blood transfusions, iron chelation, monitoring of vital medical parameters or prevention and treatment of complications, the centre will bring all necessary elements of thalassemia care under one roof. Project Samraksha will enable 400 more children from the poorest of poor families to find proper help and support for thalassemia.
Mrs Shobha Tuli was happy to see the efforts in the direction of management of thalassemia in Bangalore. She has assured all support in speaking to the Government in Karnataka to make available the kind of support system which patients in other states are getting. She also interacted with the families of the children with thalassemia and helped boost up their morale.
Speaking on the occasion Dr Mamata Mangalani extended her support and encouragement to the centre. She has promised to come back to Bangalore soon to organise a workshop for all individuals involved in management of teh disease. She also assured the centre that she will come periodically to evaluate the progress of the children.
Rashtrotthana Parishat looks at the centre as the first step. The organisation aims at bringing together the needed components to being in an effective prevention, management and cure delivering centre in Karnataka.
Sankalp India Foundation is keen to facilitate Project Samraksha as the nodal hub for thalassemia management in the region. The organising is planning to make use of modern technology and resource sharing to ensure that each essential component of management is available to every single patient.