On a busy day in a blood donation drive I was taking care of the pre-donation area. The room available for the camp was not very large so the registration and waiting area were organised in the corridor outside. A few donors patiently waited for their turn to donate while curious people walking across looked around.
Prolonged blood transfusion therapy and anemia can cause cardiac problems. Cardiac problems contribute significantly to mortality and poor quality of life for thalassemia patients. Timely intervention can help prevent and manage cardiac complications and save the patient and the family from suffering and huge financial burden.Annual cardiac screening has been prescribed for all children with thalassemia major above the age of 12 years.
The news of a child being born with thalassemia devastates the family. More grueling is the struggle to find the way ahead for disease management. Each family was forced to wage their own battle and find their way through. The situation is most difficult for the poor and the illiterate parents.