Sukrana Two years back, in the first few day of March, Sukrana received her bone marrow transplantation at South East Asia Institute of Thalaasemia Jaipur. It was the first transplant supported by Sankalp India Foundation and the beginning of a journey towards cure from the disease.

A clinical trial is an important element of research in the field of medicine and science. Before any treatment protocol, or medicine or any practice related to the patient is brought into mainstream practice, it is essential that the trials have proved it's impact.

The meeting was organized with the intention of developing synergy between the various centers involved in the transplantation for thalassemia as part of the Sankalp-Cure2Children Thalassemia BMT Network. The following organizations were represented in the meeting:

It was an incredible experience working in the Bone Marrow Transplant unit of People Tree Hospital -Sankalp collaboration. I absolutely fell in love with the meticulous nature and detailed organization in the system. It gives an opportunity to the physicians to remotely monitor patients with able assistance from the nurses.

I would like to mention a few incidents which have made a lasting impression on me.

Last year, we had shared how extremely high ferritin levels are being controlled using a combination of deferasirox and deferoxamine at our centres. "A Novel approach to control very high ferritin levels - our experience - (Volume 6 Issue 8 September 2016 Pg 6-7)" Iron overload is the root cause of the complications associated with thalassemia. Even for those children who find a match and thus have a chance to get cured - bringing down the ferritin levels is the first step towards transplantation preparation.