Each thalassemia patient should receive appropriate and adequate care and management irrespective of their financial status with the goal of restoring the quality and normalcy of their life.
Thalassemia is a genetic blood disorders the individuals suffering from which do not produce blood. They depend on blood transfusions throughout their life. With proper care and treatment the patients can live a near normal life.
However, most individuals suffering from thalassemia die before celebrating their 18th birthday. There are 60,000 individuals with thalassemia major in India and 10,000 new births each year. Cost on management of thalassemia in private setup is estimated upwards from Rs 1,00,000/- per year in India. Because of high costs of management, inadequate care and management, lack of focus on treatment and incidence based treatment these children lose the battle against the disease at an early age.
Sankalp Program for Thalassemia Cure offers end to end management of thalassemia to each child in need. The following outlines the structure of the program: