At the time of patient enrollment, we doctors collect history and the diagnosis report to confirm haemoglobinpathy. But few of them would have misplaced the report or would not have collected their reports from the previous hospitals which they had visited. Under these circumstances, what are the next steps? Dr. Reshma Srinivas shares her experience with patients at Samraksha, and explores more on this topic.What is haemoglobinopathy?
Haemoglobinopathies are diverse group of inherited blood disorders that result from variations in structure or synthesis of haemoglobin.
By timely intervention we may save a lot of complications and transfusions.
In our blood donation drives these days we have begun to capture details of deferrals to analyze and assess the reasons in greater detail. But even before that there's one trend that is pretty obvious and quite disturbing. A huge percentage of women donors are unfortunately anemic leading to them being turned down.
A total of 7 drives were organised. 453 units of blood were collected. 15 donors had an adverse reaction which is about 3.3% of total donations. The deferral rate was 10.65%.
An insight into the real problems that confront thalassemia management.
Since the beginning of this century, the availability of oral chelation therapy has enhanced to opportunity to improve overall survival and quality of life of patients suffering from thalassemia. However, are we adequately monitoring the overall survival associated with management of thalassemia? This is crucial because it may help identify the gaps in the delivery of healthcare to the patients.
- Dr. Lawrence Faulkner. Director Sankalp-People Tree Hospitals Bone Marrow Transplant Unit, Bangalore, India and Medical Coordinator Cure2Children Foundation Florence, Italy.
The first bone marrow transplantation (BMT) for thalassemia was performed in 1980, since than over 4.000 have been done, so what do we know about people who have undergone BMT many years back?
