At Sankalp India Foundation, We firmly believe that each child must be given an option for complete cure irrespective of their financial status. The HLA test is the first step which determines whether the sibling can be a matched donor to the child suffering from thalassemia. The cost of HLA typing in India is around Rs.
The other day I had visitors who had come to one of our day care facilities. For last few years the children - siblings - both thalassemia majors - were being treated at a relatively resource crunched facility. Chelation was barely given and transfusions were given only when they could not be avoided further.
Thalassemia management offers a unique opportunity for measuring the quality of blood transfusion services. Children suffering from thalassemia who are on chronic transfusion therapy generally come back to the same centre for treatment and management. This enable insights into blood transfusion medicine which otherwise may be very difficult to get.
The book of Thalassemia International Federation’s guidelines on the management of transfusion dependant thalassemia is an essential resource for anyone involved in care giving for patients suffering from thalassemia.
Bloodbanks and donors in Bangalore
You get an emergency text message late in the night, seeking help in getting a specific blood gro
In a country of a billion, only a few hundred people have the Bombay blood group. Here is how they band together in times of need
The followings are the news and updates from Sankalp India Foundation for the month of October 2014.
11 blood donation drives were organized in October collecting 926 units.
Fail Story is a new section in Sankalp Patrika. We often share stories of success with you. We thought that it may be interesting or rather important to share with you the stories of failure that we face. We hope that one of you will find a better solution to the problems we faced.
Sankalp has been involved in thalassemia management for last 3 years. What started as an initiative with very little prior experience and knowledge has blossomed into a comprehensive thalassemia management and care program.
