News and Updated for March 2016
Here are the events and updates from the month of March.
April 2016, Volume 6 Issue 4
State level Consultation on Status of Thalassemia and Other Hemoglobinopthies in Karnataka organised
"State level Consultation on Status of Thalassemia and Other Hemoglobinopthies in Karnataka" was organised by Sankalp India Foundation with the major thalassemia centers in Bangalore as co-hosts on 9th of March 2016 at Rashtrotthana Parishat, Bengaluru.
Bulk transfer of blood between blood banks of all sectors permitted by NBTC
World bank data on maternal mortality shows that even in 2011-2015 we had 174 in every 100,000[1] women dying because of pregnancy related causes. We contribute to the highest number of maternal deaths globally and stand at the 127th position in the world on maternal mortality ratio.
“SAVE BLOOD, SAVE LIVES” - Role of Rationalizing Blood Use in achieving 100% Voluntary Blood Donation
India is striving to achieve the target of 100% voluntary blood donation by 2020. National Blood Transfusion Council, National AIDS Control Organisation, Federation of Indian Blood Donation Organisations and all other stakeholders agree to the goal. The primary focus appears to increase voluntary blood donation to meet the ever growing demand for blood in the country. Is increasing supply to meet the demand the only way?
When nine families began their journey towards cure
23rd March Bangalore
With the support of DKMS Germany and Cure2Children, Italy, Sankalp India Foundation has been offering free HLA typing to patients from all over the country. Several of these patients find a match within their families. Once the match is found, starts the journey of screening and preparation for the transplantation.
From transfusions to transplant - how a five-year-old girl defeated Thalassemia
Rupavathi is a little more than five years old. She lived with her family in a small village near Dharmapuri, Tamil Nadu. Her father worked as a coolie who helped in mason work locally. Her mother was a house wife. Rupavathi was diagnosed with thalassemia when she was one year old.
The local doctor referred her to the Indira Gandhi Institute of Child Health in Bengaluru. Starting from 2011, Rupavathi was continuously receiving blood transfusion there for free. "The doctors there were nice. Sankalp volunteers helped me a lot.
Things to do before labelling a patient with haemoglobinpathy
At the time of patient enrollment, we doctors collect history and the diagnosis report to confirm haemoglobinpathy. But few of them would have misplaced the report or would not have collected their reports from the previous hospitals which they had visited. Under these circumstances, what are the next steps? Dr. Reshma Srinivas shares her experience with patients at Samraksha, and explores more on this topic.
What is haemoglobinopathy?
Haemoglobinopathies are diverse group of inherited blood disorders that result from variations in structure or synthesis of haemoglobin.