On road to more safer and affordable transplants
How do we offer transplants to more children?
How do we make transplantations safer?
How to we ensure that the best quality is delivered at the least cost?
Blogs
Disha - the Statewide Blood Helpline Celebrates 10 years
A friend in need is a friend indeed. Information made available when required the most is often invaluable. Helplines are meant and designed to serve this purpose. Our social structure often provides helplines for a lot of prevalent problems. 10 years ago it was a surprise for our little team that there is no helpline to help in search of blood.
Managing Emergencies for Thalassemics - A little boy who beat the odds.
After the end of a long busy day as I sat to look at some videos, I got a call from Dr Reshma. She informed me that a child who is taking treatment at our centre needed an urgent appendicectomy – removal of his appendix which had become infected and inflamed. It was a Saturday night.
The little girl’s story - Stories of hope and learning from our thalassemia program
When I walked up the stairs of Samraksha today I realised that a little girl was peeping down from the stairs. The look in her eyes told me that she was waiting for me. I shared the usual pleasantries with the family and walked across a hall full of children and parents straight to the doctor's room.
Summer vacations roped in to fight ferritin
As little children, we all looked forward eagerly to the summer holidays. For the team at Project Samraksha and the school-going children who come for treatment there, the anticipation for the summer holidays is just the same, however for a different reason.
They gave us freedom - let us deserve it!
Being born is a free nation, receiving great education and not having to worry about staying alive already is more blessing than what vast majority of human beings enjoy. It’s sort of a power - a power which comes with a bit of responsibility as well.
By the way, whose responsibility is it?
Over the 9 years of Sankalp Rakta Kranti, the policy of selecting a blood bank for a drive has been the willingness of the institution to adhere to working standards as mandated by NACO and Drug Controller Gazette, transparency in making units available to any patient on need and most importantly give donors a conducive environment to spur them on to become regular voluntary blood donor for life.
We have got mails - Some of the letters and messages received for Patrika and Annual Report
Dear Editor,
It was interesting to go through the Sankalp Patrika and also noted the varoius studies made in the treatment of thalassemia children.
Did read about the mention of the institute.
Thalassemia and dropping out of school did not stop Jyoti from becoming an author
Jyoti Arora is a resident of Ghaziabad. She suffers from thalassemia major. Thalassemia is a blood disorder characterized by abnormal formation of haemoglobin. This results in improper oxygen transport and destruction of red blood cells. This means that she has to undergo blood transfusions every three weeks. In a developing country like India, most thalassemia patients do not live to see an adult life. Due to irregularities in blood transfusion and iron accumulation in internal organs, they suffer from slow physical and mental growth.
Jyoti’s story, however, is different.
Final war against polio
As part of India’s endgame strategy, last week Lok Sabha was informed that Inactivated Polio Vaccine (IPV) will soon be given to children as an additional dose at 14th week along with DPT3 and Oral Polio Vaccine (OPV3) to children.
According to PTI, the National Technical Advisory Group on Immunisation (NTAGI) has made this recommendation in its meeting held on 12th June last year. Usage of social media as part of strategy to create awareness and dissemination of information about health initiatives is also being discussed.
Some insights from Sankalp’s Annual Reviews
April is a busy month at Sankalp. It is time to review the work done in last year, compile reports, share feedbacks and plan for the time to come. It's the time when the gaps from the past year tend to share the mind space with the resolve to achieve the targets for the year to come.
Are we doing enough? Are we doing it right?
Sankalp has been involved in thalassemia management for last 3 years. What started as an initiative with very little prior experience and knowledge has blossomed into a comprehensive thalassemia management and care program.