News and Updates from November 2015

Thalassemia management November was a challenging month at Indira Gandhi Institute of Child Health. Thanks to the 10 government holidays, we had tough time accommodating all the children for transfusions. Looking at the workload at the institute together with the institute we are in the process of getting a doctor exclusively for the thalassemia unit.

The HLA Revolution : Getting together to make a difference

Bangalore, Mumbai, Hyderabad, Ullhasnagar, Rajahmundry, Faridabad and Dehradun - in last few months Sankalp India Foundation together with Cure2Children has offered free HLA typing to children suffering from thalassemia who have a healthy sibling. More than 250 families have been offered HLA typing. A fourth of these are likely to find a perfectly matched sibling.

Thalassemia - The Road Ahead

While the clamour to declare thalassemia as a disability grows around the country, year 2015 has brought realisation and reaffirmation to the long held perspective that we have at Sankalp India Foundation for thalassemia. As part of the counselling and motivational exercise, also as part of the speeches and the writings in the books, often the thalassemia families are told that their child should

News and Updates from October 2015

Despite the festive season in October, many organisations came forth to plan blood donation drives. Sankalp organised 17 drives in October leading to a collection of more than 1350 units of blood. On a complications front, 3.4% of donors faced one sort of complication or the other. However, follow up was done with most of them and there is no reason for concern.

Health Ministry permits transfer of blood between Blood Banks

The Ministry of Health & Family Welfare has identified two major initiatives towards better utilisation of blood and blood components, as part of its commitment to ensure safe blood and enhanced access to blood products, on the recommendation of the National Blood Transfusion Council. The first step is permitting the transfer of blood from one blood bank to another.

Let there be Cure

Offering HLA typing far and wide We started on a journey traveling the length and breadth of the country in the month of October to reach out to families suffering from thalassemia who have never explored the option of cure. The prohibitive cost of HLA typing makes it out of reach for most families and thus the option of cure is also far from being explored.
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