Little Prachi gets cured from thalassemia
This year a young couple with 11 month old baby girl named as Prachi Bhanushali contacted us for help with Bone Marrow Transplantation.
This year a young couple with 11 month old baby girl named as Prachi Bhanushali contacted us for help with Bone Marrow Transplantation.
It was more than a year back when we a family who had two little girls suffering from thalassemia from Afghanistan approached Cure2Children Foundation for help with HLA typing. The family was overjoyed to find that both the girls had a match. The father of the girls is a driver and could not have afforded transplantation. Zwan family charities, Kabul decided to help the family and approached Dr Lawrence Faulkner for help with the transplantation.
The pathology department of JJM Medical College Davangere with it's associated blood bank at Bapuji Hospital organized a one day workshop on “Voluntary Blood Donation and Appropriate use of Blood Components” to promote voluntary blood donation and sensitize the medical fraternity about the need for rationale utilization of available blood resources.
Normally, when you tell a family which has a child who suffers from thalassemia, that they have a match, at least for one moment you expect to see a smile. This was not the case when we broke the news to five-year-old Nirmitha's family. She was detected with thalassemia within the first year of her birth and ever since she was dependent on monthly blood transfusions. Though they did come for the follow-up meetings, the expression on their face did not suggest that they were willing to go for the transplant.
Recently, we had a situation where a pregnant woman who was close to delivery was detected with Bombay blood group. She was shifted to Bangalore because the local doctors were uncomfortable handling the situation. The lady had haemoglobin on 12 gm/dl and it was then that it was discovered that the patient had extremely low platelets as well. The doctors decided to go for caesarean operation and told the family that the situation of the lady was extremely rare and critical.
Asia Pacific Bone Marrow Transplantation Meet was organised at Singapore from 28-30 October 2016. The Sankalp-Cure2Children Network was happy to have 6 of our posters selected to be presented at the meeting. In-line of our commitment to transparency, innovation and quality we continue to scientifically analyse and share our work.
How do we offer transplants to more children?
How do we make transplantations safer?
How to we ensure that the best quality is delivered at the least cost?
How to we setup an environment which enables everybody involved to achieve personal and professional excellence?
Parents of thalassemic children have several queries regarding the treatment regimen and overall health of their children. Factors that affect growth of the child comes out as a major concern in interaction with parents. In this article, we look at a 2 important aspects which lead to deterioration in growth factors for children with thalassemia and the possible remedies.
National Voluntary Blood Donation Day is celebrated in India on 1st of October every year to share the need and importance of the blood in the life of an individual. It was first started celebrating on 1st of October in the year 1975 through the Indian Society of Blood Transfusion and Immunohaematology.