Let there be Cure

Offering HLA typing far and wide We started on a journey traveling the length and breadth of the country in the month of October to reach out to families suffering from thalassemia who have never explored the option of cure. The prohibitive cost of HLA typing makes it out of reach for most families and thus the option of cure is also far from being explored.

Sundays @ Samraksha

Sundays have had a different meaning altogether for Project Samraksha, the Thalassemia Day Care Centre at Rashtroothhana Parishat. While the rest of the world enjoys their day off from work, the staff of the blood bank and the day care center put their best foot forward to work on their busiest day of the week.

Thalassemia and dropping out of school did not stop Jyoti from becoming an author

Submitted by souravroy on
Jyoti Arora is a resident of Ghaziabad. She suffers from thalassemia major. Thalassemia is a blood disorder characterized by abnormal formation of haemoglobin. This results in improper oxygen transport and destruction of red blood cells. This means that she has to undergo blood transfusions every three weeks. In a developing country like India, most thalassemia patients do not live to see an adult life. Due to irregularities in blood transfusion and iron accumulation in internal organs, they suffer from slow physical and mental growth. Jyoti’s story, however, is different.
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