Blogs

Thalassemia and dropping out of school did not stop Jyoti from becoming an author

Submitted by souravroy on
Jyoti Arora is a resident of Ghaziabad. She suffers from thalassemia major. Thalassemia is a blood disorder characterized by abnormal formation of haemoglobin. This results in improper oxygen transport and destruction of red blood cells. This means that she has to undergo blood transfusions every three weeks. In a developing country like India, most thalassemia patients do not live to see an adult life. Due to irregularities in blood transfusion and iron accumulation in internal organs, they suffer from slow physical and mental growth. Jyoti’s story, however, is different.

Final war against polio

Submitted by souravroy on
As part of India’s endgame strategy, last week Lok Sabha was informed that Inactivated Polio Vaccine (IPV) will soon be given to children as an additional dose at 14th week along with DPT3 and Oral Polio Vaccine (OPV3) to children. According to PTI, the National Technical Advisory Group on Immunisation (NTAGI) has made this recommendation in its meeting held on 12th June last year. Usage of social media as part of strategy to create awareness and dissemination of information about health initiatives is also being discussed.

Are we doing enough? Are we doing it right?

Sankalp has been involved in thalassemia management for last 3 years. What started as an initiative with very little prior experience and knowledge has blossomed into a comprehensive thalassemia management and care program. In the last three years we have benchmarked our performance with our won prior results and using the Thalassemia international Federation's guidelines for clinical management as the gold standard to compare against. Centres supported by us have indeed shown vast improvement in the quality of care being given to the thalassemia patients.

Cost of life

Submitted by souravroy on

India is the world’s biggest provider of cheap and affordable medicines to the developing world. Of course, most developing countries don't like that!

11th Anniversary

Submitted by sankalp on

Each day pass by and leave behind a memory. No history was written in a day and today when we stand at a juncture after a decade of hard work the most satisfying word that means the most in our life is ‘’ Trust’’ . Trust of blood donors, trust of blood banks, trust of the people in search of blood and every associated individual or organisation. Now that we have won the trust of thousands of people all over the country the challenge lies in keeping the trust alive and stepping ahead gradually in our endeavours to make the difference in blood banking as a whole.

Donor Feedback: Are we listening?

Submitted by sankalp on

Recently a donor shared feedback about some discomfort following a blood donation in one of the camps. Following the routine process, the donor was counselled, reassured and informed that the medical officer of the concerned blood bank will give him/her a call. The contact was passed on to the medical officer. We believed that the matter was taken care and as a routine process we would have called the donor a day or two later just to be sure that he is doing well.

Thalassemia and Us

Submitted by sankalp on

Thalassemia this word is as common as cancer, we understand the pain and the emotions behind cancer, the fear of losing our loved ones almost never leaves our eyes, no stone is left unturned to steer them from death to life, and when you lay your head against their chest and hear the heart beat rhythmically a tear escapes the eyes thanking the wonderful inventions of science. How many of us think about thalassemia in the same way?

Emergency Team - the roads taken

Submitted by sankalp on

Sankalp started 10 years back with the intent to help people who are facing difficulty arranging for blood in emergencies. That responsibility now rests with the emergency team of the organisation. In those days the challenge was to organise for blood for the patients who were sent out of the blood banks to look for donors. Replacement requests, negative group requests and seasonal shortages kept us busy. Those were the days when an AB-ve request was considered a challenge.  Then came the era of single donor platelets.

Remembering M.S.

Submitted by souravroy on

M.S. Subbulakshmi has inspired many generations, through her divine voice and her rare qualities of humility, compassion discipline and principles of conduct. Her quest for perfection and sincerity of effort were not reserved for the stage. Her own simple lifestyle and donation of most of her earnings to charity were the testament to the person she was.

The problem with elementary school system

Submitted by souravroy on

How does it feel if half of the buses and trains supposed to be running are canceled at random? And how long will we stand such disruption? At most a day or two, maybe. Well, a similar disruption in the daily lives of children has been happening quietly for years. About half of the time, there is no teaching going on in government primary schools, while these voiceless students suffer.

The miracle plant

Submitted by souravroy on

The Jatropha Curcas, also known as 'danti', is a strange species of flora. It's leafy and green - sometimes it takes the form of a shrub, but it can also become a tree up to six meters tall. It came from the tropics of Central America and can thrive in semi-arid climates with low-nutrient soil. Jatropha plants bear a poisonous little fruit - inside each are several black seeds.