Sankalp-CIMS Centre for Paediatric BMT is up and running and other news from Thalassemia Cure
Picture from a few months back. 3 of these 4 kids have been transplanted and cured while the fourth is getting ready to be admitted.
Fertility sparing cure from thalassemia - now possible
Thalassemia is an inherited genetic blood disorder that does not allow the production of normal healthy red cells. Bone marrow transplantation from a HLA-matched sibling donor can be a safe option for definitive cure but the chemotherapy used to get rid of the diseased marrow may cause infertility.
Authors:
A journey from the Dark to the Brightness
Rajnikant and Minakshi, living in a small village near Junagadh in Gujarat, were filled with joy when their first son was born. All the senior family members were also happy. They named him Ronak which meant grace, and by the grace of God he was their gift. Truly he brought "Ronak" in their family.
My experience working to keep the shelves full
Blood and Blood products are needed 24 hrs a day, 365 days a year- for emergencies, surgeries, organ transplants, to treat burns, injuries, heart disease, thalassemia, sickle cell anemia and many other medical conditions.
Karnataka Government announces support for Thalassemia and other hemoglobin disorders
Since last year Sankalp India Foundation had been requesting the Government of Karnataka to come up with a comprehensive policy for support for thalassemia.
Celebration of International World Thalassemia Day 2017
Sankalp India Foundation dedicated 8th of May to commemorate both the thalassemia patients who are no longer with us but are always close in our heart and to celebrate with all those patients who are alive and fighting everyday for their right to a better quality of life.
