We are happy to share that 5 abstracts by the Sankalp-Cure2Children Network were selected to be presented at the 61st Annual Meeting of the American Society of Haematology held in Orlando-USA in November 2019. Dr Lawrence Faulkner, our Medical Director and Dr Pallavi Mehta represented our team at ASH this year.
In 2013, one morning a few weeks after the new day care cent with Rashtrotthana Parishat started, a 24-year-old girl was brought into the day care supported by 2 people. She could not walk and her skin tone seemed abnormal - thanks to the heavy iron overload.
The next edition of the Sankalp-Cure2Children Network meeting for BMT was organised on 4&5 June 2019 at People Tree Hospitals, Bangalore. The two day meeting held every six months is an opportunity for our transplant teams to get together and brainstorm - contributing to the fine outcomes.
Thanks to the success of the Sankalp Program For Thalassemia Cure, people from different corners of the country look forward to our group for BMT for thalassemia. With haplo identical transplants also beginning to show some promise, BMT is now being sought by many families. The not for profit costs and the fine results has made even people of Kutch look forward to transplants.
This is a story of a boy who is 14 year old and very smart. He belongs to a very small village of Bihar.
It has been three years since the time Sankalp started the program for thalassemia cure. We started our bone marrow transplantations for patients who had a matched related donor only. Even in this selected group of patient, recent data shows that the team has achieved 95.5% disease free survival and 98.3% overall survival last year, building upon the success of previous years. Specially in the matched sibling context, the team improved disease free survival from 89.1% across the years to 98.3% for last year alone.
Sankalp India Foundation, a Bangalore based voluntary organization started in 2003, achieved a double milestone of having completed 100 Bone Marrow Transplants for children with thalassemia, and have collected 100,000 units of blood through voluntary blood donation drive
This is a story of a family who are extremely poor and who are also categorised as backwards, they are also treated very low in the society which they live.
Sankalp-Cure2Children Network meeting for BMT was organised on 28-29 May 2018 at People Tree Hospitals, Bangalore. The two day meeting held every six months is an opportunity for our transplant teams to get together and brainstorm - contributing to the fine outcomes.
Sunil and Kavita both were from Madhya Pradesh. Sunil was from a small village called Nimach and Kavita was from Ratlam. As both hailed from the same community, they got married as per tradition. Both of them weren’t very highly educated and had merely completed primary school.
