16th November 2016, Indore
Sankalp India Foundation and Maharaja Yeshwant Rao Hospital, Indore, a unit of the state government of Madhya Pradesh joined hands to start bone-marrow transplantation centre to cure the children suffering from thalassemia and sickle cell disease.
Anil and Manisha, both natives of Mumbai were married and leading their lives in the day to day hustle of the city. Few year later, Pradhnya, a little baby girl entered their lives.
For those patients who have related fully HLA matched donors (apart from siblings), does the relationship with the donor influence the outcome? We observed that there was a significant difference in outcomes between those patients who received bone marrow from a fully matched father and those who received it from their mother.
Whenever someone asks about the vision for our thalassemia centres – we mention we hope to close them one day! The intention behind the statement was to reach a point where every child who is likely to do better with the option of permanent cure gets transplanted and enough is done to prevent new births with thalassemia.
The second meeting of the Sankalp Cure2Children Network was held on 21-22 September 2017 at Ahmedabad.
Though Pooja was the first child in the family of Gopal bhai and Jasu ben, Khushi brought more happiness to the family as one can always find a sweet smile on her small face. She was born to the GopalBhai family which was living in a small village called Jamjodhpur in Gujarat.
My heartfelt thanks to all who supported and guided me to participate in one of the prestigious conferences for nurses, The APHON Annual Conference in Palm Springs, California, USA. APHON is the professional organization for paediatric haematology/oncology nurses and other paediatric haematology/oncology healthcare professionals.
In August 2017, Team Sankalp crossed 2 major milestones. Sankalp-People Tree Center for Paediatric Bone Marrow Transplantation, Bangalore crossed the 50 mark of the number of patients transplanted. We were able to achieve this just before its second anniversary. By August end, we reached 55 number of transplants .
Picture from a few months back. 3 of these 4 kids have been transplanted and cured while the fourth is getting ready to be admitted.
Thalassemia is an inherited genetic blood disorder that does not allow the production of normal healthy red cells. Bone marrow transplantation from a HLA-matched sibling donor can be a safe option for definitive cure but the chemotherapy used to get rid of the diseased marrow may cause infertility.
Rajnikant and Minakshi, living in a small village near Junagadh in Gujarat, were filled with joy when their first son was born. All the senior family members were also happy. They named him Ronak which meant grace, and by the grace of God he was their gift. Truly he brought "Ronak" in their family.
